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This blog post was first published at our sister site http://intensivecarehotline.com
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Your loved one has just been admitted to Intensive Care and is being treated for their critical illness.
You feel like some of the doctors and nurses are talking at you and over you and don’t necessarily talk with you or talk to you. You feel like you are not in a good place and you may feel like there is a big barrier between you and the health professionals that are in charge of your critically ill loved one’s destiny.
You may have been asked to get out of the room or the cubicle every time the doctors are doing their ward round and examine your loved one and you may have wondered whether they’ve got anything to hide. When you are allowed to come back, they have already moved on and the bedside nurse is giving you a summary of the plan ahead. Of course you can wait for one of the doctors to talk to you later in the day what is going to happen to your critically ill loved one.
About 10 minutes later the bedside nurse is asking you kindly to leave the room again, as she wants to “quickly” turn your loved one to the other side so that he or she doesn’t get a pressure sore. 10 minutes go by and even half an hour, before you are “allowed” to get back in. You realise that you have little or no control, let alone have a say of what’s happening to your critically ill loved one. The very person that you share a house with, the very person that you love or the very person that is of your own flesh and blood. All of a sudden there are people creating all these barriers around you and you feel like you are in this big machinery that you can’t control. You wonder whether the doctors and nurses would want their own family be treated like that.
It doesn’t have to be that way, but most Intensive Care Units or even some individual health professionals are still creating those barriers between health professionals, Patients and their Families. Some units are more progressive than others, but you probably have a feel by now of the things that could be improved in order to make you and your family more comfortable with what is happening with your critically ill loved one. Health professionals in Intensive Care are like fish in water and they often don’t even realise how the people who are not in the water may feel.
A recent article suggested that “Decisions to forgo life support may depend heavily on the ICU where patients are treated”. The article explains how the culture in an Intensive Care unit or in a hospital impacts on the care provider’s decision making around life support or withholding CPR or withholding mechanical ventilation. The article suggests that the ICU culture is the biggest influence on a Patient’s treatment, coming before Patient and Family preferences.
Here is a link to the article Link (The article suggests that the ICU culture is the biggest influence on a Patient’s treatment, coming before Patient and Family preferences)
Sincerely, your Friend
Patrik Hutzel