{"id":239,"date":"2013-06-13T14:39:39","date_gmt":"2013-06-13T14:39:39","guid":{"rendered":"http:\/\/client78.ldrgifts.com\/?p=239"},"modified":"2022-03-14T16:11:11","modified_gmt":"2022-03-14T05:11:11","slug":"living-with-disability-and-planning-a-good-death","status":"publish","type":"post","link":"https:\/\/intensivecareathome.com\/living-with-disability-and-planning-a-good-death\/","title":{"rendered":"Living with disability – and planning a good death"},"content":{"rendered":"

An interesting article about \u201cplanning a good death\u201d, where a survey highlights that 70% of Australians want to die at home. Unfortunately more than half- 54%- die in Hospital and 32% die in nursing homes. The article was first published at theconversation.com on the 31\/5\/2013.
\nAnother key point of the article is, \u201cThat a dying person is\u00a0socially excluded from the process of dying and deliberately excluded from the decision-making process.\u201d<\/p>\n

Have a great weekend!<\/p>\n

Patrik
\nhttp:\/\/theconversation.com\/living-with-disability-and-planning-a-good-death-14679<\/a><\/p>\n

Living with disability \u2013 and planning a good\u00a0death<\/h3>\n

\u00a0by Di Winkler
\nOccupational Therapy Department at\u00a0Monash University<\/a><\/span><\/p>\n

Australians have a poor track record of talking about death and dying. A\u00a0recent survey<\/a>\u00a0of Australians who\u2019d just lost a loved one to a terminal illness found just 15% were told how their relative wanted to be cared for in their final days. Consequently, whilemost<\/a>\u00a0(70%) people prefer to die at home, more than half (54%) die in hospital and 32% die in\u00a0nursing homes<\/a>.<\/p>\n

For young people living in or at risk of admission to nursing homes, death and dying is often a taboo topic. Many of these people have degenerative neurological conditions and a limited life expectancy. Others have severe acquired brain injury and, due to their limited mobility, are at a high risk of a premature death from complications such as pneumonia.<\/p>\n

People with disability are at significant risk of a \u201cdisenfranchised death\u201d, which is when death is not openly acknowledged with the dying person. In such instances, the dying person is\u00a0socially excluded\u00a0from the process of dying and deliberately excluded from the decision-making process.<\/p>\n

In their last days, many people want quiet reassurance. They want to know that whatever they are worried about is going to be fine. A disenfranchised death can leave a person feeling lonely, disempowered, frightened and anxious before they die.<\/p>\n

A good death does not happen spontaneously; it requires carefulconsideration and planning<\/a>\u00a0to decide\u00a0what happens, where death occurs and who is present. This\u00a0includes:<\/p>\n